craniofrontonasal dysplasia

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    Overviews of CFND

    • National Organization for Rare Disorders - Craniofrontonasal Dysplasia

    • Headlines UK - Craniofrontonasal Syndrome

    • Headlines Leaflet - Craniofrontonasal Syndrome

    • GARD - Genetic and Rare Diseases - Craniofrontonasal Dysplasia

    • GOSH - Cranio-fronto-nasal dysplasia

    Articles/Studies

    • ​Phenotypes of craniofrontonasal syndrome in patients with a pathogenic mutation in EFNB1

    • Surgical approach of hypertelorbitism in craniofrontonasal dysplasia

    Preparing for a Surgery

    • Potential qestions to ask at a consultation​

    • What to pack for the hospital

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    * The information contained in this site is not intended to be medical advice. You should seek the care of a specialized team of medical professionals if you or a family member has CFND